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WORDS

I blog here and write on Medium on occasion. I post a lot on Facebook and Twitter.

Jennifer Brea

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At Sheffield Doc/Fest last week - Unrest + Unrest VR both took him awards!

Jessica Taylor-Bearman is a woman who helped me find the faith that I would not die, that I could live with and in spite of this disease, that eventually, I would find a way back to myself. From age 14, she was bedridden with severe ME - nearly a decade - and yet has managed to live a big, beautiful life. Yesterday, I did something I thought I would never have the strength or health to do - I traveled across the ocean and to Kent to meet her. In 3D!! Jessica has meant more to me and my survival than she can ever know. More than that, she taught me that no matter how little we have, our only choice/greatest strength/saving grace is to give and to love. (She is also one of the superstars of @unrestfilm! and the author of a forthcoming memoir, A Girl Behind Dark Glasses.)

It's become something of a ritual. Every time I am on the eve of something amazing - TED, Sundance - I end up crashing hard because I pushed myself farther than I should have with all the planning, work and travel it took to get there. Luckily, simple saline IVs and the occasional myer's cocktail help a lot. Unfortunately, they aren't covered by insurance (especially those home visits) so I can't afford to have one regularly, even though I know they would help make a difference. But for big moments like these, it's a must. I know how lucky I am to have the option. We need to keep fighting for more research, to keep fighting until everyone has access to treatment and care. 3 days until our UK premiere @sheffdocfest ! 🇬🇧 🎉 #sheffdocfest #mecfs #pots #spoonie #pwd #pwme #timeforunrest

TWITTER

Jennifer Brea

RT @tsukjiko: 小さいﾊｲﾀｯﾁ。 https://t.co/yZTDlHarJK
about 10 hours ago
Jennifer Brea

#crashed but what a beautiful evening! thank you. So grateful.
about 11 hours ago
Jennifer Brea

RT @bearmccreary: Thrilled that @unrestfilm is finally coming out in Sept. This amazing doc has to be seen (& heard) to be believed..… https://t.co/ve1klzlvdI
about 18 hours ago